Patient version of guidelines: current practice and research gaps_Chinese Journal of Evidence-Based Medicine

Authors：

YAN Lijiao ¹ , LIANG Shibing ¹ , YU Zeyu ¹ , CHEN Wei ¹ , Sarah Scott ² ,  LIU Jianping ¹

1. Center for Evidence-based Medicine, Beijing University of Chinese Medicine, Beijing 100029, P. R. China;
2. National Institute for Health and Care Excellence (NICE), Manchester M1 4BT, UK;

Corresponding author：

LIU Jianping, Email: liujp@bucm.edu.cn

Keywords：

Patient version of guideline; Decision-making; Shared decision-making; Patient engagement

DOI：

10.7507/1672-2531.202208037

Video：

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There is an increase in published studies relevant to the development of patient version of guidelines (PVGs). We reviewed, summarised and analysed the current developments in this field, with the aim of informing domestic scholars of the factors to consider when developing quality PVGs. We proposed three recommendations: (1) the concept of patient guidelines needs to be better defined; (2) a platform for the dissemination of PVGs should be established to support their implementation; and (3) a standardised PVGs development methodology should be developed to ensure the quality of the PVGs.

Citation： YAN Lijiao, LIANG Shibing, YU Zeyu, CHEN Wei, Sarah Scott, LIU Jianping. Patient version of guidelines: current practice and research gaps. Chinese Journal of Evidence-Based Medicine, 2023, 23(2): 221-226. doi: 10.7507/1672-2531.202208037 Copy

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12.	叶超群, 梁东风, 凌梦钰, 等. 纤维肌痛运动干预患者实践指南(2021年). 解放军医学院学报, 2021, 42(8): 790-797.
13.	王瑞香, 朱思静, 周丽琼, 等. 缺血性脑卒中二级预防患者指南的构建. 护理研究, 2021, 35(24): 4351-4357.
14.	谢雅, 杨克虎, 吕青, 等. 强直性脊柱炎/脊柱关节炎患者实践指南. 中华内科杂志, 2020, 59(7): 511-518.
15.	邱敏丽, 谢雅, 王晓红, 等. 骨质疏松症患者实践指南. 中华内科杂志, 2020, 59(12): 953-959.
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20.	杨丹, 郭海玲, 李小花, 等. 基于证据的脑卒中患者肢体功能康复健康科普作品研制. 中华护理教育, 2022, 19(2): 101-106.
21.	方霖楷, 黄彩鸿, 谢雅, 等. 类风湿关节炎患者实践指南. 中华内科杂志, 2020, 59(10): 772-780.
22.	黄叶飞, 杨克虎, 陈澍洪, 等. 高尿酸血症/痛风患者实践指南. 中华内科杂志, 2020, 59(7): 519-527.
23.	刘辉, 王华, 刘云兰, 等. 中国儿童消化道异物管理指南(患者与公众版, 2022)计划书. 中国实用儿科杂志, 2022, 37(2): 81-87.
24.	Morse JM, Mitcham C, Hupcey JE, et al. Criteria for concept evaluation. J Adv Nurs, 1996, 24(2): 385-390.
25.	Brignardello-Petersen R, Carrasco-Labra A, Guyatt GH. How to interpret and use a clinical practice guideline or recommendation: users' guides to the medical literature. JAMA, 2021, 326(15): 1516-1523.

1. GIN Guidelines International Network. GIN PUBLIC toolkit. Available at: https://g-i-n.net/wp-content/uploads/2022/01/Toolkit-combined.pdf.
2. Dreesens D, Stiggelbout A, Agoritsas T, et al. A conceptual framework for patient-directed knowledge tools to support patient-centred care: results from an evidence-informed consensus meeting. Patient Educ Couns, 2019, 102(10): 1898-1904.
3. van der Weijden T, Pieterse AH, Koelewijn-van Loon MS, et al. How can clinical practice guidelines be adapted to facilitate shared decision making. A qualitative key-informant study. BMJ Qual Saf, 2013, 22(10): 855-863.
4. Yan LJ, Li SA, Jin XJ, et al. Development of patient versions of in Chinese mainland: a systematic survey of current practices and methods. Patient Educ Couns, 2022, 105(12): 3410-3421.
5. 李艳, 陈耀龙, 陈静, 等. 心肌梗死二级预防非药物措施患者指南的研制思路. 中国循证医学杂志, 2016, 16(5): 617-620.
6. 肖淑君, 高玉婷, 王小琴, 等. 患者指南及其制订方法介绍. 药品评价, 2017, 14(6): 44-48.
7. 邢年路, 周英凤, 方园, 等. 基于证据的患者指南制订和发展的研究进展. 解放军护理杂志, 2021, 38(7): 67-70.
8. Dreesens D, Kremer L, van der Weijden T. The Dutch chaos case: a scoping review of knowledge and decision support tools available to clinicians in the Netherlands. Health Policy, 2019, 123(12): 1288-1297.
9. Gandjour A, Westenhöfer J, Wirth A, et al. Development process of an evidence-based guideline for the treatment of obesity. Int J Qual Health Care, 2001, 13(4): 325-332.
10. 陈耀龙, 荀杨芹, 李博, 等. 如何制订患者指南. 协和医学杂志, 2020, 11(4): 453-458.
11. 姜雨婷, 田润溪, 段思柳, 等. 对糖尿病高危足患者指南制订的思考. 中国护理管理, 2016, 16(12): 1628-1632.
12. 叶超群, 梁东风, 凌梦钰, 等. 纤维肌痛运动干预患者实践指南(2021年). 解放军医学院学报, 2021, 42(8): 790-797.
13. 王瑞香, 朱思静, 周丽琼, 等. 缺血性脑卒中二级预防患者指南的构建. 护理研究, 2021, 35(24): 4351-4357.
14. 谢雅, 杨克虎, 吕青, 等. 强直性脊柱炎/脊柱关节炎患者实践指南. 中华内科杂志, 2020, 59(7): 511-518.
15. 邱敏丽, 谢雅, 王晓红, 等. 骨质疏松症患者实践指南. 中华内科杂志, 2020, 59(12): 953-959.
16. Santesso N, Morgano GP, Jack SM, et al. Dissemination of clinical practice guidelines: a content analysis of patient versions. Med Decis Making, 2016, 36(6): 692-702.
17. Loudon K, Santesso N, Callaghan M, et al. Patient and public attitudes to and awareness of clinical practice guidelines: a systematic review with thematic and narrative syntheses. BMC Health Serv Res, 2014, 14: 321.
18. Fearns N, Graham K, Johnston G, et al. Improving the user experience of patient versions of clinical guidelines: user testing of a Scottish Intercollegiate Guideline Network (SIGN) patient version. BMC Health Serv Res, 2016, 16: 37.
19. 中华医学会儿科学分会临床药理学组, 中华医学会儿科学分会呼吸学组, 刘恩梅, 等. 中国儿童咳嗽指南(2021患者版). 儿科药学杂志, 2021, 27(S1): 17-22.
20. 杨丹, 郭海玲, 李小花, 等. 基于证据的脑卒中患者肢体功能康复健康科普作品研制. 中华护理教育, 2022, 19(2): 101-106.
21. 方霖楷, 黄彩鸿, 谢雅, 等. 类风湿关节炎患者实践指南. 中华内科杂志, 2020, 59(10): 772-780.
22. 黄叶飞, 杨克虎, 陈澍洪, 等. 高尿酸血症/痛风患者实践指南. 中华内科杂志, 2020, 59(7): 519-527.
23. 刘辉, 王华, 刘云兰, 等. 中国儿童消化道异物管理指南(患者与公众版, 2022)计划书. 中国实用儿科杂志, 2022, 37(2): 81-87.
24. Morse JM, Mitcham C, Hupcey JE, et al. Criteria for concept evaluation. J Adv Nurs, 1996, 24(2): 385-390.
25. Brignardello-Petersen R, Carrasco-Labra A, Guyatt GH. How to interpret and use a clinical practice guideline or recommendation: users' guides to the medical literature. JAMA, 2021, 326(15): 1516-1523.

Chinese Journal of Evidence-Based Medicine

Patient version of guidelines: current practice and research gaps

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